Scottish Longitudinal Study
Development & Support Unit

Current Projects

Project Title:

Understanding the association betweem multimorbidity and place of death using a representative Scottish cohort

Project Number:

2023_001

Researchers:

Sarah Bowers, Frances Quirk, Joanna Bowden, Sarah Mills, Linda Williams, Utkarsh Agrawal,

Start Date:

31/07/23

Summary:

This project, which forms part of a PhD with the University of St Andrews, will investigate how multimorbidity (≥2 long-term health conditions) is captured on death certificates in Scotland utilising the linkage between the Scottish Longitudinal Study, Census data and National Records for Scotland death certificate data and explore the associations between multimorbidity and demographic profiles,  self-reported health and place of death.  
  
Aim 
To characterise demographic and multimorbidity profiles within a ten year Scottish decedent cohort and analyse the associations of these on place of death.  

References:

1. Barnett K, Mercer SW, Norbury M, Watt G, Wyke S, Guthrie B. Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study. Lancet. 2012;380(9836):37-43.

2. Willadsen TG, Siersma V, Nicolaisdottir DR, Jarbol D, Guassora AD, Reventlow S, et al. Symptom burden in multimorbidity: a population-based combined questionnaire and registry study from Denmark. BMJ Open. 2021;11(4):e041877.

3. Portz JD, Kutner JS, Blatchford PJ, Ritchie CS. High Symptom Burden and Low Functional Status in the Setting of Multimorbidity. J Am Geriatr Soc. 2017;65(10):2285-9.

4. Kasteridis P, Street A, Dolman M, Gallier L, Hudson K, Martin J, et al. Who would most benefit from improved integrated care? Implementing an analytical strategy in South Somerset. Int J Integr Care. 2015;15:e001.

5. Soley-Bori M, Ashworth M, Bisquera A, Dodhia H, Lynch R, Wang Y, et al. Impact of multimorbidity on healthcare costs and utilisation: a systematic review of the UK literature. Br J Gen Pract. 2021;71(702):e39-e46.

6. Llop-Medina L, Fu Y, Garces-Ferrer J, Donate-Martinez A. Palliative Care in Older People with Multimorbidities: A Scoping Review on the Palliative Care Needs of Patients, Carers, and Health Professionals. Int J Environ Res Public Health. 2022;19(6):08.

7. Harrison N, Cavers D, Campbell C, Murray SA. Are UK primary care teams formally identifying patients for palliative care before they die? Br J Gen Pract. 2012;62(598):e344-52.

8. Finucane AM, Bone AE, Etkind S, Carr D, Meade R, Munoz-Arroyo R, et al. How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery. BMJ Open. 2021;11(2):e041317.

9. Rosenwax LK, McNamara B, Blackmore AM, Holman CD. Estimating the size of a potential palliative care population. Palliat Med. 2005;19(7):556-62.

10. Murtagh FE, Bausewein C, Verne J, Groeneveld EI, Kaloki YE, Higginson IJ. How many people need palliative care? A study developing and comparing methods for population-based estimates. Palliat Med. 2014;28(1):49-58.

11. Grundy EM, Stuchbury R. Multimorbidity as assessed by reporting of multiple causes of death: variations by period, sociodemographic characteristics and place of death among older decedents in England and Wales, 2001-2017. J Epidemiol Community Health. 2022;02:02.

12. Billingham MJ, Billingham S-J. Congruence between preferred and actual place of death according to the presence of malignant or non-malignant disease: a systematic review and meta-analysis. BMJ Supportive & Palliative Care. 2013;3(2):144-54.

13. The Scottish Government. Strategic Framework for Action on Palliative and End of Life Care. 2016-2021. 2015

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